I Got My Lipedema Medical Record from 2012
What a Norwegian vascular specialist wrote when I was diagnosed at 20 years old.
I recently asked my general practitioner for the medical records from the time I first learned that I had lipedema. This was in January 2012, at a Norwegian hospital.
What you see here is translated directly from my medical record, from Norwegian into English. I thought it might be interesting to share. I was only 20 years old and already struggling with pain, heaviness and swelling in my legs.
Imagine receiving this information from a doctor at the age of 20, and then being sent home with almost nothing else.
There was no social media community like the one we have today. Very little information was available, and I was not given any real guidance on how to understand the condition, manage my symptoms or possibly reduce the risk of progression.
As you can see, I received only one practical recommendation which was to wear Class II compression stockings up to my knees. But I was 20 years old. I did not wear them. My lipedema did not noticeably progress for several years. Then, in 2018, during a period of intense stress, everything changed.
Members can continue reading the full article below and access the rest of the LipedemaScience library. You can also read about what happened to me in 2018. That article is open to everyone, including free subscribers.
When My Legs Became Two Balloons
Eight years ago, in 2018, I had one of the worst lipedema years of my life.
It took 4 years before I met another person with lipedema. There was nothing like the community we have today. I didn’t have you. I didn’t have anyone.
