One study has also suggested that there may be an increase in breast tissue fibrosis in women with lipedema. I wrote about this in December.
Lipedema is typically described as symmetrical, but in my case it is not. My lipedema is more pronounced on the right side, which was also one of the reasons I was diagnosed as early as 2012.
I believe we will likely come to describe lipedema more clearly as a systemic disease in the future. In my everyday writing, I often simplify the condition because I relate to what the established literature currently states. At the same time, I try to challenge that narrative by sharing individual studies and personal stories. Slowly but steadily, the understanding is evolving in a more nuanced direction.
In the past, lipedema was described primarily as a fat disease. Today, I see that the majority consensus increasingly refers to it as a fat tissue disease, which is also supported by emerging research.
Thank you for bringing this up. I have lipedema in my arms myself and have had two arm surgeries. But I also know women with lipedema who have it on their back, their stomach, and other areas as well. I also know one woman who has had lipedema surgery on her chin.
In ICD-11, the latest International Classification of Diseases from the WHO, the code for lipedema is EF02.2. The code description explicitly notes that “lipoedema may also occur in the scalp.”
I had a severe heat injury that was a massive trigger for worsening my lipedema. I think it is important to note that INFLAMMATION is a huge piece along with, or perhaps because of hormone fluctuations?
I have heard that there is something about the estrogen receptor 'A' that takes the inflammation and stores it as the lipedema fat but have not found a Dr. that can explain or understand this. Love to see if you can find any research.
I wish my primary care doctors were aware of diagnosis symptoms, where lipedema would be considered prior, simply telling people to exercise and lose weight. I could have been diagnosed maybe 10 years earlier if my primary care doctor was better informed.
Please consider rewording your questions to include those whose Lipedema affects their arms. Every question only mentioned legs.
One study has also suggested that there may be an increase in breast tissue fibrosis in women with lipedema. I wrote about this in December.
Lipedema is typically described as symmetrical, but in my case it is not. My lipedema is more pronounced on the right side, which was also one of the reasons I was diagnosed as early as 2012.
I believe we will likely come to describe lipedema more clearly as a systemic disease in the future. In my everyday writing, I often simplify the condition because I relate to what the established literature currently states. At the same time, I try to challenge that narrative by sharing individual studies and personal stories. Slowly but steadily, the understanding is evolving in a more nuanced direction.
In the past, lipedema was described primarily as a fat disease. Today, I see that the majority consensus increasingly refers to it as a fat tissue disease, which is also supported by emerging research.
Thank you for bringing this up. I have lipedema in my arms myself and have had two arm surgeries. But I also know women with lipedema who have it on their back, their stomach, and other areas as well. I also know one woman who has had lipedema surgery on her chin.
In ICD-11, the latest International Classification of Diseases from the WHO, the code for lipedema is EF02.2. The code description explicitly notes that “lipoedema may also occur in the scalp.”
I had a severe heat injury that was a massive trigger for worsening my lipedema. I think it is important to note that INFLAMMATION is a huge piece along with, or perhaps because of hormone fluctuations?
I have heard that there is something about the estrogen receptor 'A' that takes the inflammation and stores it as the lipedema fat but have not found a Dr. that can explain or understand this. Love to see if you can find any research.
I wish my primary care doctors were aware of diagnosis symptoms, where lipedema would be considered prior, simply telling people to exercise and lose weight. I could have been diagnosed maybe 10 years earlier if my primary care doctor was better informed.