4 Comments
User's avatar
Rita Rietveld's avatar

Hoi Carina. Ik heb een vraagje. Als ik me abonneer krijg ik dan de informatie in het engels? Of in het Nederlands? Groetjes. Rita

CarinaW's avatar

Hoi Rita. Ik gebruik nu Google Translate. Als je ervoor kiest om de artikelen per e-mail te ontvangen, is er automatische vertaling naar een taal naar keuze in zowel Gmail als Outlook :) Met vriendelijke groet, CarinaW

janine's avatar

This is incredibly useful and helpful. As someone who loves research, when I found out 2 years ago that I have lipedema, I threw myself into research. Yes, it was chaotic because there were not really many reference points. It was hard trying to connect dots and even harder to implement changes. I'm definitely

on a better path now, and still finding out other things to add to my toolbox.

I love what you have written because it's a clear guide for how to see change and strategies to implement it.

Thank you Carina❤️

CarinaW's avatar

Thank you so much, Janine — this really means a lot. That chaotic deep-dive phase after diagnosis is so familiar, and honestly it’s part of why LipedemaScience exists. The research IS out there, but it’s scattered across journals, written in language that takes a science background to decode, and rarely connected into anything you can actually use on a Tuesday morning. Trying to piece it together alone is exhausting.

The fact that you went looking anyway says a lot about you. And now you have a toolbox — that’s exactly the goal. Keep building it 🫶🫶